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Epilepsy is a disorder that is full of assumptions and misconceptions due to media representation. Most people when they think of seizures think of someone falling to the floor and shaking.
To be honest, I don’t know all that much about epilepsy myself. However, we have people who have epilepsy in the community. Also one of my best friends son is epileptic. So I decided to ask them!
This is what they wish people knew about epilepsy.
“…There is more than one type of epilepsy. We don’t all drop to the ground shaking uncontrollably. There are actually lots of different types of seizures. We don’t all get warnings, some seizures come out of the blue!”
– Carolyn Allen
Generalised Onset Seizures – These seizures start in both hemispheres of the brain simultaneously (at the same time).
There are many types of generalised onset seizures, these include:
Unlike Generalised Onset Seizures, only one part of the brain is affected during a focal seizure. The signs and symptoms will depend on the part of the brain where the seizure occurs. Signs and symptoms can vary from person to person.
The two main types of focal onset seizures are:
“… At first, it used to really upset me about how flippant some people can be when talking about epilepsy. I once had a meltdown and sobbed when a lady I knew asked me what condition my girl had and then replied “oh is that all” when I said epilepsy. What she didn’t know was about the countless times my girl was blue lighted to A&E, intubated and placed in high dependency. Some people don’t understand that epilepsy is life-threatening, or that your world is turned upside-down by daily seizures, that you are always on edge and on seizure watch.”
– Carolyn Watson
A seizure is not always a medical emergency. Usually, the person can carry on with their daily life after a certain period of time.
However, a seizure can become a medical emergency if:
“More general awareness and understanding of seizures types. Side effects. Links to SPD. Because our daughter has epilepsy, her processing time is slower. This affects everything she wants to do in a day, speech and language, concentration, memory. It’s more than just seizures.”
– Gurvinder Mashiana Shergill
People with Epilepsy can also suffer from Sensory Processing Difficulties (SPD). This is due to the fact that epilepsy can cause a slower processing time. This can affect one of the 7 senses. People with SPD can be sensory seekers or avoiders, depending on their sensory processing.
*To find out more about Sensory Processing Difficulties follow the link below:*
Many people assume that a lot of people who have epilepsy are born with it. However, this is not the case, it can happen at any stage in life for a variety of reasons.
The Most Common Causes of Epilepsy
Seizures can develop for many reasons, below are some of the most common reasons, categorised by age.
Infants and Children
Children And Adults
So that’s our list of things our community wished people knew about epilepsy. I hope that it has given you some new insights going forward. We also hope it has helped broaden your understanding of the disorder.
A massive thank you to our contributors for helping give us some insight when writing this blog. They are:
Gurvinder Mashiana Shergill
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